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Managing your own recovery

From listening to what other people have told us, it can be difficult to work out what to do for the best, in terms of helping the recovery process along after you get home. Many patients are surprised and frustrated by how long the recovery process can sometimes take. Some unfairly blame themselves for "not doing enough" or "not trying hard enough" while others tell us that "trying to do too much" can knock them back and sap their confidence. It's important to strike a balance.

In this section, we've included some information and advice on some simple things you can do to help you manage:

  • tiredness and fatigue
  • exercise and build your strength
  • cope with breathlessness
  • increase your ability to do more

There are a variety of locally run programmes in the community to help people return to exercise. A variety of schemes can be accessed without a health professional referral; follow the links below for examples for the London boroughs of:

  • Southwark
  • Lambeth
  • Lewisham and Greenwich
  • Bromley and Bexley

If you live outside of these areas, your local council's website should have information on your local opportunities.

 

 

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Web Link: Information about pulmonary rehabilitation

This page has information about pulmonary rehabilitation: what it is, who it is for, and how to be referred.

Web Link: Lambeth's real-plus-leisure-card

Lambeth's real plus leisure card gives discounted prices at Lambeth leisure centres at peak or off-peak times, and concession prices are available.

Web Link: Lewisham Council's exercise schemes

Lewisham council's 'Being Active' page has information on local activities, and discounts for over 60s, students and those receiving some benefits.

Web Link: Managing low energy using pacing

This link provides some great information from the Royal College of Occupational Therapists about how to pace your activities. It has examples of how to pace everyday activities such as showering and doing the laundry

Web Link: Memory service (Southwark and Lambeth) MIND

Memory difficulties after critical illness are common and can last beyond the 1st year back home. There are community and hospital based services to help assess and management these memory issues. In the community, there is Lambeth and Southwark Mind who: work across both boroughs to support positive mental health and wellbeing. Working closely with a range of partners, we offer a number of activities from our peer support groups to an information line. Our mission is, to provide free,...

External Article: Pacing your recovery

Pacing is a way of stopping from you doing too much and then being exhausted afterwards. This resource is designed for people with Myalgic Encephalitis, but the principles of pacing work for post-ICU recovery too.

Web Link: Silverfit

Silverfit is a charity led by older people for older people who aim to promote happier, healthier ageing through physical activity and at the same time combat social isolation. They run in person sessions in some London parks where you socialise before and after an activity such as nordic walking or tai chi. There are some brilliant exercise videos on the website.

Web Link: Southwark exercise schemes

Move more is Southwark council's webpage describing different opportunities for physical activity.

Web Link: Starting to improve your fitness

Walking is a great way to regain your confidence, fitness and independence. This link takes you to the NHS walking for health page, which includes advice on how to pace yourself when walking, links to useful apps, some exercise videos, and even advice on running when and if you are ready!

Web Link: Starting to rebuild muscle

People can lose muscle very quickly during a stay in intensive care, and this link takes you to the NHS exercise 'strength and flexibility' page, which has advice on where to start rebuilding your strength. It includes pictures of exercises in sitting and standing, and videos showing the exercises in more detail.