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Recovering from an intensive care stay can be difficult, and the term post-intensive care syndrome (PICS) is used to describe the range of symptoms you might experience. Half of patients after critical illness are affected by PICS, and recovery can be supported by:

  • your GP
  • hospital specialists
  • community teams
  • family, friends
  • possibly local and national organisations and charities.

At Guy's and St Thomas's hospital, a team of specialists from ICU run a weekly Post ICU recovery outpatient service for patients who have been cared for in one of the adults ICUs. 

An appointment in the outpatient clinic is planned for around 8-12 weeks after returning home. This section will detail the Post-ICU recovery service at Guy's and St Thomas's and include links to all the support available locally and nationally.

The peer support groups for patients, carers and relatives can be extremely helpful during the recovery phase, and at Guy's and St Thomas's there is a peer support group led by our specialist post-ICU recovery nurse. Details can be found in the ‘Patient and relative (peer) support group at Guy's and St Thomas's’ article using the search bar below.

 

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Web Link: Air travel - fit for air travel (flying) advice and information - NHS Scotland

Air travel can expose you to a number of factors that can impact your health and well-being. Although most travellers won't notice any adverse effects to their health during a flight, the effects from flying may present challenges if you have certain underlying health conditions. Use this excellent link to the website for more information

Web Link: Attendance Allowance

Attendance Allowance is a benefit for people aged over state pension age who need someone to help look after them.You must have needed help for at least 6 months (unless you are terminally ill). This link will take you to the NHS Choices web page, which will tell you more about what this allowance is, who is eligible and how to claim it.

Web Link: Careline365; careline alarm guide

A Careline alarm is perfect for anyone who could be vulnerable at home, including older people, disabled people and people with health problems. Careline alarms are especially useful for people at risk of falling. Careline alarms help these groups of people live worry-free in their own homes whilst providing comfort and peace of mind for friends and loved ones.

Web Link: Chartered Society of Physiotherapists

A link to the Chartered Society of Physiotherapists' page, where you can look for registered physiotherapists in your area.

External Video: Common physical symptoms video by the Faculty of Intensive Care Medicine (FICM)

Video outlining physical symptoms that can be experienced after critical illness.

External Video: Common psychological problems in ICU video by the Faculty of Intensive Care Medicine (FICM)

It is very common for patients who have suffered a critical illness to experience psychological issues. This 59 sec video briefly explains this

Web Link: Community Care Assessment

If you think you, or someone you know, needs help to cope day-to-day, the first step is to get a needs assessment from your local council. The needs assessment is free and anyone can ask for one. This help could include getting equipment like a walking frame or personal alarm, changes to your home such as a walk-in shower, practical help from a paid carer, access to day centres and lunch clubs or moving to a care home.

Web Link: Critical Care Support Network

The Critical Care Support Network is a charity set up for anyone who has experienced critical illness with a stay in any intensive care or HDU. They support former patients, their family and those close to them. They have a range of activities, including: online peer-support (where recovering patients and/or their family and friends can attend a meeting where people discuss their experiences), online exercise classes - from a class suitable for people who have recently been discharged...

Web Link: Every Mind Matters NHS website

Looking after your mental health There are little things we can all do to help look after our mental health. Having good mental health helps us relax more, achieve more and enjoy our lives more. We have expert advice and practical tips to help you look after your mental health and wellbeing, so discover what works for you.

Web Link: Explain my ICU procedure - Post Intensive Care Syndrome (PICS)

This video explains post intensive care syndrome, which affects many patients after critical illness and time on the ICU.